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Polycythemia and hydrea

Hi, I'm BrendaP

Ever since starting hydrea, I have had two episodes of horrible pain while I am sleeping. The day I felt terrible. My spouse says I wake up breathing fast and heart racing. She asks me how I am feeling bad but I can’t describe just terrible.

  • Post #1
  • Thu Mar 8, 2018
Hi, I'm Beth B.

I wasn’t able to tolerate hydrea myself. Two attempts to use it and both times I became unable to exert myself, even small stairs left me breathless. Other non tolerance symptoms as well. Also, I too had heart racing and discomfort all around.

I am now on JAKAFI (Ruxolitnib). The JAKAFI is working well, but it too has side effects that are treatable. JAKAFI made my diastolic blood pressure rise, which is a potential side effect, and I am now taking 20 mg of Lisinopril daily and my blood pressure has returned to normal.

  • Post #2
  • Fri Mar 9, 2018
Hi, I'm Violet A A.

What about Pegasys?

  • Post #3
  • Mon Mar 12, 2018
Hi, I'm Tracy R.

Has anyone had extreme fatigue and nausea while taking Hydrea?

  • Post #4
  • Mon Jun 4, 2018
Hi, I'm JAMES V.

My experience was different. When I started taking hydrea my platlet count varied up and down as much as a million every two weeks. So my doctor prescribed anagrelide. The excessive variation ended.

  • Post #5
  • Wed Jul 4, 2018

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