I was diagnosed with b-cell marginal zone lymphoma in October 2016. I am presently in a watch and wait. The only symptom I have is fatigue and bone and muscle aches. My WBC is at 19. I’ve had one CT scan which all was normal. I guess I just want to hear about what am I watching and what am I waiting for.
I’ve been in remission for almost 5 years now after follicular NHL which transformed into Diffuse Large B-Cell. Went thru radiation and chemo. I came upon a book called Radical Remission by a PhD author who documented cases that went into remission where the initial diagnosis was grim. Worth the read – author outlines 9 “practices” which almost all individuals adhered to. Some are common sense type things and others maybe not so much.
There doesn’t seem to be very many current posts in this group so I hope that others may join and encourage us newbies. DX on 10/4/19, and I also felt shell shocked. Diffused Large B cell Lymphoma, stage 4.
I’ll have my 3rd R-CHOP on Friday 12/6. The Staff are very patient and intelligent. They know what they are doing and will talk you through each step of any test or injection and about anything else that you may ask.